Monthly Archives: April 2015

Fears

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Jude has been attending physical therapy regularly for 3 weeks.

She is trying to be brave.

But she is all over the place and doesn’t want to be there. Today she actually asked if I was going to take her home. Like there was a chance I would leave her there forever. Both the therapist and I knew that it was time to cut it short.

We haven’t really accomplished anything. Even the therapist has tried resorting to bribing her with chocolate and monster truck stickers. No dice.

For Jude, the therapy room represents one of the few things that she is afraid of. Why? Based upon her few other fears we can only assume (since we never saw) that it resembles the orphanage that she spent the first 18 months of her life in.

Jude’s memories of the orphanage are by and large not positive.

Next week we will try one more time to get her to engage in the therapy room (at all). To try something different Mummy will not go (instead Auntie and her cousin will be there with her). If that doesn’t work then we shall have to see if it is possible to move into the adult therapy pool and/or meet off hospital grounds at a community playground.

Nobody said that this was going to be easy. Not even for the experienced therapist.

News of no news

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Pretty much we are still waiting for the dossier to be submitted to the MOJ; but I now have a better idea of when that will likely happen
Which means that I have a general idea of when the IAC meeting that Gabriel’s file will be reviewed at will take place.
Which means I have a very general idea of when her written referral may be issued.
Which means I could make a semi educated guess on when we will be returning to Bulgaria.
It’s all soon. But I don’t want to jinx myself. I will say that the timing is very, ahem, interesting. Or so it appears to be right now. We are all EXTREMELY excited.

10 months home

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We have been getting a lot of answers lately. Some even today.

We almost have Jude’s new therapy schedule in place. Speech, PT, and Play therapy. Everyday of the week something happens.

I finally ended my indecision when it came to Jude’s preschool/Pre K plans for next year. Since we picked up Jude (even during pickup trip in Bulgaria) we have been using more and more from the Preschool Learning Processes book at Oak Meadow (http://www.oakmeadow.com). I love Oak Meadow and I feel pretty strongly that when the time comes for Kindergarten that we will be using their curriculum. However, for us, it felt as though there was a gap between what our family needing between the Preschool Program and Kindergarten. What we need is the Preschool program with a teeny bit more and with the structure of the Kindergarten program.
It took a very long time to find something that fit our needs.
And I was totally shocked to find that what did was available online for FREE!
Wee Folk Art offers downloadable Homeschool Companion guides. http://weefolkart.com/content/homeschool-companion-guides Combined with what we already have on hand and the resources of the local library. We couldn’t be more pleased.

Jude’s postplacement report was completed and apostilled today. Once the photos that needs to go with it are back, we will be mailing this off to Bulgaria.

Jude very much wants to do 2 things: Go to the beach and go on an airplane. I keep telling her soon. We hope to be able to do both by the end of May.
Until then she keeps looking at these two photos of her from late last June (on the airplane and at the beach, both her firsts).
Jude airplane
British Airways flight from Sofia, Bulgaria to London, U.K. June 26, 2014
Jude beach
Reid State Park Georgetown, Maine June 30, 2014

No Jumping

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With an antique house comes antique stairs. In our house in is one of the coolest visual features. To little kids it is also super fun because the last step before you get into the living room is a 4 foot by 4 foot landing.
It sort of resembles a miniature wooden stage.
For Jude, lately, it has been a platform from which she has been practicing for her future career as a Hollywood stuntwoman.
This is among the reasons the the “5 little monkeys” nursery rhyme has become a popular verse here. If for some reason you have forgotten this gem from your own childhood is goes like this:
“5 little monkeys jumping on the bed
1 fell off and bumped his head
Mama called the doctor and the doctor said:
‘no more monkeys jumping on the bed’

4 little monkeys jumping on the bed…”

And so on and so on.

After several warnings last night Jude jumped off the landing for probably the thousandth time and lost her balance and dove headfirst into the antique newel post.
For several reasons I knew that at 8:00 on a Saturday night for the cut that she had the ER was the last place we wanted to be (and frankly probably one of the safe places in the city at this time of day).

Grandma to the rescue!
She was able to quickly hit up Walgreens and get the glue and steri strips that I was lacking in my ultra first aid kit.
30 minutes later between the two of us we had accomplished gluing Jude’s head gash back together.
After some ice and some Tylenol she looked at me and said “no jumping”.
I think she has learned this lesson the hard way.
Jude’s first major scrape, but knowing her enthusiasm it won’t be her last. She has already taken two big falls on the swing set this morning (on the actual first day of spring here in Maine) and got right up and kept going.
At least we were able to avoid the ER this time.

Epic Update

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I’m sooooo sorry. So many time I’ve wanted to sit down and update this but it just didn’t happen. And tonight this won’t happen in one go either, there will be at least a half-dozen interruptions but I am not stopping now.

On Gabriel’s adoption:

Where we are now: our entire dossier is sitting in Bulgaria somewhere in the translation/authentication phase. I am awaiting word sometime in the next week or two (hopefully) that it has been submitted to the Bulgarian ministry of justice.

But if you think it was that easy? Nooooo. Never.

When last I wrote I we had just been fingerprinted and were awaiting word on approval. We didn’t get it. What we got instead was a “Request for Evidence” letter. AKA dreaded pink-slip (it is printed on pepto-bismol pink paper). What had gone wrong? Somewhere in my homestudy, USCIS was unhappy with the wording/paragraph structure of my approval to adopt Gabriel. When you read the paragraph it is obvious that I was approved, but USCIS wanted it worded a very specific way. So my homestudy agency had to type up a 2-page addendum, which needed to be notarized, which needed to have the notarized oversight letter from the placing agency attached to it sent to them. Meanwhile, in the hopes to save some time for the Bulgarian translators we went ahead and sent everything that we already had. Then we waited. Finally, on March 20 the long-awaited approval from USCIS arrived. On a Friday (naturally). So on Monday the 23rd I had the approval copy notarized then brought the addendum and the approval to apostilled then rushed over to the post office and FINALLY our dossier was submitted.

What’s next? We wait for Gabriel’s official referral. If you look back in this blog into the archives starting in November 2013 you will see a post mentioning Jude’s referral at IAC meeting #261. We are waiting for Gabriel submission/IAC meeting. We are told as soon as we are submitted we should be referred at the very next IAC meeting, which have been occuring pretty regularly. We hope that this meeting happens by the end of this month and that we will be able to travel to meet Gabriel by the end of May.

It is a very different process this time around. We know quite a bit about Gabriel. We know where she is/where in Bulgaria we will be going. We know that her orphanage is quite a good one, but we are still so desperate to see her, meet her, and get the process moving quickly so we can get her home quickly. We know now, personally, how important early permanency can be.

On Jude:

Where we are now: Jude is in bed. Not sleeping. Playing with a sticker.

Things have been rough, but I think we are getting there. When we left off Jude had been having seizures. Jude continues with seizures. This is life now. We have had 2 EEGs (one sleep deprived, one 24 hour ambulatory). What did we learn? Not much medically that we didn’t already know. I learned that I can no longer cope on 2.5 hours sleep in a 30 hour period. Jude now FULLY comprehends what “don’t touch it” means.

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Jude now has a medication to ward off severe seizures. We press on with life.

Except…

The neurologist took note of a bunch of things not observed back late last summer. Most of it was sort of changing Jude’s diagnoses around a bit. Some were warning us what to look out for when she grows up. And it helped kick what we needed for services into gear. A tough day, for everyone (Thank goodness Grandma was with us and there is such a thing as White Chocolate Raspberry Pancakes). But it has led to some very positive changes.

I am no longer managing Jude’s needs from a nursing caseworker AND mommy standpoint. Jude needs a mommy. She now has a social caseworker to take some of the tedious crap away. I still handle the pure nursing aspect, because having 2 RNs would be weird but having the help of a medical-model LCSW has been wonderful! It has given us more time together and me less time on the phone/doing paperwork and chasing down random things (which is my job description at work, but when I am home…I wanna be with Jude)

After a very intense month of evaluations and equally intense IEP meeting last week Jude will be getting Speech therapy 4 times weekly, and Physical therapy (still working on how often). She also has a pending appointment with pediatric orthopedics, and we are looking into a play therapist.

Despite the fact that Jude is developmentally and socially delayed; academically Jude is unquestionably on-target and quite possibly advanced for age. This is definitely perplexing for us and it can be frustrating for her. For example: Jude may not be able to speak well at all but for those that understand her she recognizes and can recite all letters of the alphabet. Can count to 7 (scratch that: 9), knows all her colors and all basic shapes with some complex shapes. Within the past week in addition to her usual drawing and painting skills she is working hard (at her own direction) at trying to write some letters and is succeeding with the letters W and X (so far). We have also noted that she has started informing us of phonics (example: “U makes the ou sound”). She can also name all the parts of her body (again one has to be familiar with her speaking pattern to understand). She loves to sing, but is is never recognizable, unless you know what it is she was trying to attempt (ie “twinkle, twinkle” “baa baa black sheep” “abc”). For this reason Jude will start Pre-K via homeschooling in September and may very well be ready for Kindergarten studies next year; but she still needs to seek out social skills with her toddler-aged friends as concepts like sharing and taking turns are still new and oftentimes difficult.

We had Jude’s second postplacement visit. Yes. That happened. Where has the time gone? Bulgaria requires 4 visits each 6 months apart, so we are halfway through this process now with Jude. I have an awesome adoption social worker and homestudy agency. I know I have said this several times before, but they are just sooooo wonderful. My poor cat still has PTSD from the days when I had foster children and used to have DHHS social workers over (sometimes little girls left and never came back) so he meows and cries the WHOLE time our social worker is over and never lets Jude out of his sight. Our social worker even takes the time to try and put the cat at ease.

I have been working on discipline with Jude. We tested the waters with the adoption version of “time-ins.” Excuse my language but Fuck, No. I hope somewhere that this concept works for somebody. Whoever came up with it did not see anything close to what went down in this house when we tried it (I nearly ended up in the ER on more than one occasion). The old “Happiest Toddler on the Block” time-ins are better, but minimally so and only work when she is already behaving. And ignoring? Forget it, it becomes a battle of wills. I tested the waters with time-out. Better. But not much can be done when Jude simply won’t sit still at anything. Ever. That is until I saw an old clip of Bob Ross painting. You know, the “Happy little trees” guy? Yeah, that stuff is mezmerizing for some unknown reason. Enter the creation of the “Bob Ross timeout”

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A timeout in which Jude watches a youTube clip of Bob Ross painting something (3-5 minutes).

She will go from toddler rage ball to zen master inside of 10 seconds. She will sit until the end of the clip without me nagging, and oftentimes elects to watch more than one clip. Leaves time-out calm and happy. This is the definition of a Win-Win situation. I share this in case it happens to work for another parent. Because seriously, nothing has ever been so magical in this house. Sometimes even I have a “Bob Ross timeout” too.

I learned a lot about hair care in regards to adhesive over the past month that is worth sharing. All-natural peanut butter applied generously to adhesive (even medical electrode adhesive) and left on for 15-20 minutes does a great job of breaking it up. The EEG lab attempted in advance to use baby oil. This presented us with additional problems: the best “shampoo” is to create the following: a half and half mixture of liquid castile soap and water, rub into the hair, sprinkle in baking soda sparingly and continue to lather (used various commerical shampoos and this really did work the best). After rinsing soap, rinse hair with a mixture of 1 tablespoon of apple cider vinegar in 1 cup warm water. After 2 days (uses) of using this shampoo/rinse Jude’s hair had returned to normal.

After the second EEG I promised Jude if she “didn’t touch it” that I would buy her any toy at WalMart that she wanted. Yes, any toy. No limits. I knew going in that this would be a scary proposition. But as this was the second EEG that she had made it through and this one had required her not to interfere with tens of thousands of dollars of medical equipment strapped to her head and back for over a day I felt that it was warranted. So after bringing her to WalMart at 6:00 on a Thursday night, she spent 45 careful minutes looking at and checking out every toy in the toy section. And we walked away with this (in her opinion the best toys at WalMart):

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My kid is awesome!

I decided to do the Easter bunny thing. I got 80+ colored plastic eggs and filled them with various treasures for Jude and placed them around the house. Yeah, she knew EXACTLY what to do. Unlike birthdays and Christmas we didn’t have to teach her to open presents. She got right up out of bed and within 20 seconds had an armful of plastic eggs. She actually had a blast, and was rather disappointed Monday morning when the Easter bunny didn’t come back.

Now that we are at this stage in Jude’s adoption I have been getting the question on how I think Jude is doing here, attachment-wise. Jude is fully attached. Like she was born to me. You cannot tell the difference between my daughter’s attachment to me vs. my nephew’s attachment to my sister. Likewise me to her. We function as a family unit. I do remember being worried about this even after meeting her. But it happened. I cannot pinpoint one thing or one process or one book that worked, it was definitely some (but not all) of everything. I also think that trusting that it was OK to stop doing something that wasn’t working was key as well. To relax and realize that I am not a pinterest, helicopter, girl-scout troop leader super-mom and that there are days where I am overjoyed that I got 2 socks on her and I really don’t care if they match or not (that’s a fashion thing, right?).

Jude’s happy. I’m happy. Here’s hoping that someday soon Gabriel will be with us and happy too.

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